6 Pounds!!! Good Job Jen!!!

Can't believe it is a month since I updated this blog. Jennifer has been doing good. We went to a Nutrition appointment yesterday, she gained 6 pounds in the last 5 weeks! She is going in the right direction now. Jen is still eating up a storm and we are supplementing through her feeding tube. Now they want us to get more free water into her. Always something, but at least everyone is thrilled the extra calories are working! The other subject are her seizures. They are not good, there has been no decrease since we changed her meds to go through the feeding tube. We were all holding out hope that this might help, but that is not the case. We go to Neurology next week. I am sure we will discuss the VNS again, and see what else they have as possibilities. Traveling on the bus to school is scary. It is not a good situation with the seizures and long bus ride as I have mentioned before. We had 2 more incidents recently where they were calling us as she was on her way home with seizures on the bus. Always something, but at least she is gaining the weight she needs to. One step at a time as they say.