One step forward, many steps back

Jen had another good week of school! She missed a 1/2 day this week for her physical appointment, but other than that, she has been there, although her seizures are very active and seem to be increasingly worse in length and severity. We spoke to the doctor today, she adjusted one of her medicines. I hope this gives Jen some relief. As I have said before her seizures control her moods which control her day. I had to get her from school again yesterday as they were so bad, the school didn't want her on the bus, and neither did we. Every time she gets on that bus, I time 50 minutes, praying she has a safe ride without seizures. She is safe at school and safe at home, we all know how to care for her, but when she is on the bus, as nice as the monitor and driver are, they are not able to help her, which means if she had cluster seizures or lengthly seizure, they will have to call 911. I feel like its a matter of time before it happens, and really don't like the feeling at all!! Her seizures are getting worse, and the bus ride is too long, but for now, its the only solution.

One week from today Jen will be at the hospital waiting surgery for the next morning. Once the feeding tube is placed and we get her better nutrition wise, we will pursue the vagal nerve stimulator to help control her seizures. We are kind of planning on this working, I hope it does, as what else is there to try? Always something!