December - the month went by so fast!!

I can't believe it has been a month since I have signed in. I keep thinking I need to update, but never seem to get to it. So in a nutshell here is the past month. Jen has been doing great with her seizures, do I dare even say it? Only a couple a day if that, and short in duration since the middle of December. The doctor still wants us to inquire about the Vagal Nerve Stimulator, and we do too, but we have to jump through a few hurdles with nutrition and GI before anyone will consider it. Jen's weight is still unsteady, we go to nutrition this week for a high calorie diet - I certainly know I can't feed her more in quantity, so we will see what they have in store for us. We will make all attempts before we have to go back with a feeding tube, which unfortunately we have had discussions about with the various doctors. In a couple weeks we see endocrinology which is another new department for Jen. Since the middle of December, Jen's white count has been low, due to medications, but also means we have to keep her away from crowds, anyone the least bit sick, etc.... how do you do that when we have to go to labs, hospitals and doctors offices? So far, so good thank goodness she is healthy!! So many specialists and so much time needed to make all the appointments and then actually get to them!! It is a constant challenge, I had to cancel one today which was 1 1/2 hours away and we had an ice storm with 2 hour delays for the schools. The appt couldn't be delayed time wise, so waiting for another date now. My calendars are a challenge, and with each appointment I make, means asking for yet another day off of work. Well off to enjoy my day with Jen, it is stormy and raw outside, maybe we can watch a movie...lol... oh Jen and her movies, at least she got alot of new ones for Christmas !!