A new day, a new chapter

Last night I received a call from Jen's GI doctor to discuss her latest lab work. Good news was her thyroid is fine and she does not have Celiac. Great news!!! Then he tells me she has Vitamin D deficiency, and it is very low. Low enough to need mega supplements for the next 6 weeks. Also along with that she will need to take Calcium supplements. Well in order to do that we have to contact her nephrologist as we were suppose to limit extra calcium due to her kidney stone she has had for 8 years!!! So when I think I am doing right by my daughter with one doctor, another thing pops up in another area. So this morning was spent leaving messages for her specialists in nephrology and neurology as we need clearance from both before the new meds are started. They both called today and will hear back tomorrow again from one. In the morning Jen and I will travel to Boston for her awaited nutrition appointment, more lab work due to the deficiency they now will test even more, and an x-ray for her bones. One doctor said today she needs to have a bone density scan now which I am sure will be scheduled soon too. So tomorrow we will start the vitamin D, learn more about nutrition to get her to gain some weight, and try to keep it on her, learn how bad her bones may be..... not looking forward to tomorrow, as it only means more medications, more regimens and more future appointments. Poor Jen, she can't catch a break these days, we have been so happy her seizures are settled lately, and all this gets added. Her attendance from school has been horrible, as mine at work has, she has so many appointments, and our calendar for Jan and Feb is loaded already! Well off to get Jen settled in bed so we can get up at 5:30 and be on the road by 6am. Fun Friday, huh?