The day started early today for both Jen and I, we left the house a little after 6am and didn't get to the hospital until 8:50. She was so good in the car. We met with the nutritionist and she went over Jen's diet, seems I was right, she takes in ALOT of calories, very few fluids and is very low on intake for calcium and Vitamin D. No surprise there. After numerous calls to verify supplements with her other specialists we now have clearance for a calcium enriched diet. We will see how she does, hasn't had any milk based things to drink, since she was 5, so it may take a bit.
So we have drinks, vitamins and a supplement added to the mix and we have about 5 weeks to work hard and get her gaining weight. Hope it works. If she can start gaining weight, maybe we can get with the original plan of the VNS for her seizures. Seems we take one step forward with one doctor, and two steps back with the next.
We also had labs and x-rays done today. Jen was so quiet all day, the nutritionist did not get the opportunity to meet the "real Jen" she didn't make a peep, not once, we actually had a conversation for over an hour. She made up for it at the lab though - she yelled, she cried, she was so so MAD!! I didn't blame her, she had enough!!
So after a day like that, we came home, cuddled up and watched her movie. She is happy to be home, with no one poking at her. I told her it is now the weekend, she can do what she wants for the next two days, I got such a smile from her!! On a good note, no appointments next week - none planned anyway!
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